Unfortunately, this is so much easier said then done lol ...... In my mind I want to be at the lake water skiing like I use to, getting a little too much sun on my skin, then having some beers and bbq'ing til the sun went down! Thats when the real party would start! Bust out the fireworks.... the bigger, the louder, the better! I would love watching things explode in the air and feel the boom so big it rang deep in my chest! This would go on well in to the wee hours of the morning. Afterwards, we would collapse and sleep and wonderful and exhaustive sleep!
Now, reality check! There is no skiing or sun on my skin unless I want my core body temp to go berserk and celebrate the 4th in the hospital! Now the beer, maybe 1 or 2, MAYBE, but I shouldn't with all my meds. The BBQ yum, that will still happen, just not with me in the middle of it. Again with the heat problem. So of course we progress on to the fireworks right? Well kinda! I learned the hard way that the intensity and loudness set off something in my central nervous system that makes me really sick. Go figure! If I do not muffle the sounds of the fireworks, the constant loud popping and booming rattle deep to the core of my body, literally somehow and after awhile I can hardly walk or speak or see. I will be in bed sick for 2-3 days not really able to eat or move other then bathroom trips or drinking water. It's a cruel twist to something that is suppose to be so enjoyable celebrating USA and our freedom and it puts me basically in a prison of my own.
But, the way I see it, I will celebrate in my own way with my family. We will be with my Sister and her family that I love so dearly. I will go swimming in her pool in the shaded areas and smell the bbq as it cooks away! As the sun goes down I will cram my ears with cotton and cover with headsets to muffle noises so I can see the beautiful colors shoot in to the air. I will be damned once again if I let MS set limits on me and confine me to a prison within myself while my country is free and celebrating just that fact!
Happy 4th everyone! Have a safe holiday and we will talk again soon!
LaP
